- Center on Health Equity and Access
- Clinical
- Health Care Cost
- Health Care Delivery
- Insurance
- Policy
- Technology
- Value-Based Care
Patients With CML Feel Shared Decision-Making Is Lacking, Want More Focus on QOL
Data from the Survey of Unmet Needs in Chronic Myeloid Leukemia (CML SUN) trial show that quality of life (QOL) and shared decision-making are priorities for patients, said Fabian Lang, MD, of Goethe University Hospital in Frankfurt, Germany.
Data from the Survey of Unmet Needs in Chronic Myeloid Leukemia (CML SUN) trial show that quality of life (QOL) and shared decision-making are priorities for patients, said Fabian Lang, MD, of Goethe University Hospital in Frankfurt, Germany.
Transcript
What are some of the main points that health care providers and health systems can take away from the CML SUN trial results?
The CML SUN trial showed that, for example, fatigue is a quite present problem in these patients, which we were not much aware of. So, this is something we've got to get a handle on, which is difficult to evaluate, difficult to treat, and difficult to talk about. And what we've also seen is that doctors are mainly focused on BCR-ABL levels, which means numbers, in order to conduct and treat the patients. But, on the other hand, patients are more focused on things like quality of life, daily problems, and they are mainly focused on that. It is something which is quite true across all line of therapies.
And in the end, we also found that most of the patients do not have the feeling that a shared decision-making is taking place. So doctors tend to to tell the patients how therapy works and do not propose multiple therapies or discuss the therapies with the patients, and this is also something which comes through over all lines of therapy.
Dr Kathy Zackowski Discusses the Importance of Rehabilitation Research and Trials in MS
April 26th 2024Kathy Zackowski, PhD, National MS Society, expresses the inherent value of quality rehabilitation trials for broadening clinical understandings of multiple sclerosis (MS) and bettering patient outcomes.
Read More
Examining Low-Value Cancer Care Trends Amidst the COVID-19 Pandemic
April 25th 2024On this episode of Managed Care Cast, we're talking with the authors of a study published in the April 2024 issue of The American Journal of Managed Care® about their findings on the rates of low-value cancer care services throughout the COVID-19 pandemic.
Listen
Empowering Community Health Through Wellness and Faith
April 23rd 2024To help celebrate and recognize National Minority Health Month, we are bringing you a special month-long podcast series with our Strategic Alliance Partner, UPMC Health Plan. In the third episode, Camille Clarke-Smith, EdD, MS, CHES, CPT, discusses approaching community health holistically through spiritual and community engagement.
Listen
Award-Winning Poster Presentations From AMCP 2024
April 23rd 2024At the Academy of Managed Care Pharmacy (AMCP) 2024 annual meeting, multiple poster presentations concerned with health equity, data collection, glucagon-like peptide-1 agonists, and more were acknowledged for their originality, relevance, clarity, bias, and quality.
Read More
