Julia Adler-Milstein, PhD, assistant professor at the School of Information and the School of Public Health at the University of Michigan, describes the challenges of data gathering, and ensuring not only that the data is accurate and complete, but that the patient can use that data and ultimately lead a healthier lifestyle with that knowledge.
Julia Adler-Milstein, PhD, assistant professor at the School of Information and the School of Public Health at the University of Michigan, describes the challenges of data gathering, and ensuring not only that the data is accurate and complete, but that the patient can use that data and ultimately lead a healthier lifestyle with that knowledge.
Transcript (modified)
How can we ensure that the data being gathered is actionable and usable?
Yeah, that’s a great question. I think we’ve been working so hard just to get the data to be accessible that we, in some ways, haven’t even encountered that next level of challenge of “I’m looking at this data and it’s wrong” or “I’m looking at this data and there’s conflicting pieces.” I think there’s going to be a whole set of issues that will come that we’re going to have to grapple with to make sure that the data is accurate and complete.
And, again, you know there’s going to be the clinical notes side of it, which is really the clinicians’ take on what’s going on, but what if that differs from what the patient feels? And so I think it’s a whole uncharted side of issues.
But what I think is really clear and is, in some ways, what I think is right—I mean, the patient needs to dictate this. If they want access to all their data, and they want to use it in a certain way, no one should really be saying no, you shouldn’t do that. So I think that that’s where they’re seeing tremendous agreement momentum.
But then, as you said, then we’re going to have to figure out how to use the data well and that’s, I think, much less clear on how to do that, and who’s going to do that, and how to make sure that, at the end of this, patients come out with a clearer sense of how to lead healthy lives.
Dr Dalia Rotstein: Physicians Must Be Aware MS Affects People of All Backgrounds
April 24th 2024Dalia Rotstein, MD, MPH, emphazises the importance of awareness that multiple sclerosis (MS) impacts patients from various backgrounds as clinicians think through ways to improve access to care and research efforts in MS.
Read More
Empowering Community Health Through Wellness and Faith
April 23rd 2024To help celebrate and recognize National Minority Health Month, we are bringing you a special month-long podcast series with our Strategic Alliance Partner, UPMC Health Plan. In the third episode, Camille Clarke-Smith, EdD, MS, CHES, CPT, discusses approaching community health holistically through spiritual and community engagement.
Listen
Overcoming Employment Barriers for Lasting Social Impact: Freedom House 2.0 and Pathways to Work
April 16th 2024To help celebrate and recognize National Minority Health Month, we are bringing you a special month-long podcast series with our Strategic Alliance Partner, UPMC Health Plan. Welcome to our second episode, in which we learn all about Freedom House 2.0 and the Pathways to Work program.
Listen