Spinal Muscular Atrophy

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Improving SMA HRQOL Must Address Patient and Caregiver Well-being
Improving SMA HRQOL Must Address Patient and Caregiver Well-being

February 7th 2023

Data from 2 prospective studies showed correlations between impaired patient health-related quality of life (HRQOL) and disease severity, as well as correlations between the health of caregivers and their HRQOL and caregiver burden.

YouTube Videos Have Mixed Quality, Reliability for Educating Patients About SMA
YouTube Videos Have Mixed Quality, Reliability for Educating Patients About SMA

February 2nd 2023

Researchers Highlight Implementation Gaps Among SMA Newborn Screenings
Researchers Highlight Implementation Gaps Among SMA Newborn Screenings

January 30th 2023

Patient-Reported Outcomes Emerging as Way to Monitor, Assess Patients With SMA
Patient-Reported Outcomes Emerging as Way to Monitor, Assess Patients With SMA

January 24th 2023

Screening for SMA in Newborns Alleviates Functional Burden, Associated Comorbidities
Screening for SMA in Newborns Alleviates Functional Burden, Associated Comorbidities

January 17th 2023

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