How can we create more standardized health information platforms that can easily exchange patient information?
Joseph Alvarnas, MD, asked the panelists' thoughts on a proposed timeline for when patients and the healthcare system could anticipate a technological fix to the existing problem of interoperability.
Rebekkah Schear, MIA, said that several patient-friendly apps have been developed that ensure patients have access to their health information and a line of communication with their care provider. Schear also highlighted the importance of wearable devices for a more real-time sharing of patient information with their care provider(s).
"I think the general point is there has to be a balance between having immediate access to most things in our lives from a communications perspective and knowing that the health sector is going to be a little bit slower to catch up," Schear said. "But at the same time, we need to overcome this thick barrier between providers and patients where provides aren't necessarily able and available to connect with patients with immediacy. There needs to be some sort of balance there," she added.
Both Schear and Michael Kolodziej, MD, agreed that the evolution of HIPAA is inevitable and it has to keep pace with the technological advances within healthcare.
Provisional CDC data show that US babies gained roughly a year in life expectancy in 2022; study findings indicate that the COVID-19 pandemic significantly raised the risk of preterm birth for expectant California mothers; New York Attorney General Letitia James said about 4 million New Yorkers were affected by a data breach of the medical transcription company Perry Johnson & Associates.
Read More
Emily Goldberg Shares Insights as a Genetic Counselor for Breast Cancer Risk Screening
October 30th 2023On this episode of Managed Care Cast, Emily Goldberg, MS, CGC, a genetic counselor at JScreen, breaks down how genetic screening for breast cancer works and why it is so important to increase awareness and education around these screening tools available to patients who may be at risk for cancer.
Listen
IQVIA Report Spotlights Shortages for Pain, Obesity, and Oncology Therapies
November 21st 2023A new report from IQVIA provides an overview of current US drug shortages, shedding light on major areas of concern, such as medications to address pain, cardiovascular conditions, obesity and diabetes, and multiple forms of cancer.
Read More
Researchers Identify Potential Biomarkers for SMA Motor Improvement Following Nusinersen Treatment
November 17th 2023A retrospective, exploratory analysis identifies biomarkers predictive of spinal muscular atrophy (SMA) response to nusinersen and suggests the efficacy of using machine learning algorithms to anticipate patient outcomes.
Read More
Data on Delandistrogene Moxeparvovec Can Inform Future Gene Therapies
November 17th 2023The FDA approved delandistrogene moxeparvovec-rokl (Elevidys, Sarepta Therapeutics) in June to treat Duchenne muscular dystrophy in ambulatory pediatric patients aged 4 through 5 who have a confirmed DMD gene mutation.
Read More