Redesigning Health Care: Keeping the Patient Connected and at the Center of a System That Learns in Real Time
A letter from the editor-in-chief of The American Journal of Accountable Care®.
Unmet Needs and the Future of Treatment in SMA
Experts in SMA provide closing thoughts on unmet needs in SMA including the importance of research into treatment combinations and sequencing as well as multidisciplinary care and healthcare equity.
Shared Decision Making When Selecting a DMT in SMA
Emma Ciafaloni, MD and Mary Schroth, MD, FAAP, FCCP consider the importance of shared decision making for patients and families when selecting an available DMT in SMA.
Payor Perspective on Coverage Decisions for DMTs in SMA
Kevin U. Stephens, Sr., MD, JD and Maria Lopes, MD, MS provide insight into the factors that payors must consider when creating and implementing policies on treatment coverage in SMA.
New DMTs in SMA: Onasemnogene and Risdiplam
Emma Ciafaloni, MD and Mary Schroth, MD, FAAP, FCCP discuss recent clinical trial designs and results for new disease-modifying treatments in SMA: onasemnogene and risdiplam.
New DMTs in SMA: Nusinersen
Emma Ciafaloni, MD and a panel of experts in SMA review the efficacy of nusinersen by discussing difference between clinical trial results and real-world clinical application.
Adapting to Rapid Advancement in Treatments in SMA
A multidisciplinary panel of experts discusses the rapid pace of advancements in disease-modifying treatments and shares insights into how to work with payors to adapt and improve policies.
Challenges with Payor Systems for the Diagnosis of SMA
Panelists provide insight into current challenges with payor models and early screening for SMA and discuss the importance of partnering with payors when rapid diagnosis and treatment are required.
Screening and Diagnosis of SMA in Children and Adults
Experts in the management of SMA discuss the screening and diagnosis of infants, children, and adult patients and emphasize the importance of health care equity to avoid treatment delay.
A Multidisciplinary Approach to Diagnosis and Treatment
Key opinion leaders in SMA emphasize the importance of a multidisciplinary approach and centers of excellence in the early diagnosis and treatment of spinal muscular atrophy.
Clinical Burden of Spinal Muscular Atrophy
A multidisciplinary panel of experts discusses the clinical burden of spinal muscular atrophy on patients, families, and caregivers and considers the importance of patient education and advocacy.
An Overview of the Epidemiology of SMA
An expert neurologist, Emma Ciafaloni, MD, provides an overview of the epidemiology of spinal muscular atrophy and discusses symptom burden, differential diagnosis, and prevalence.
Health Services Research and The American Journal of Accountable Care®: More Important Than Ever as We Enter 2021
Trends in the Use of Clinical Decision Support by Health System–Affiliated Ambulatory Clinics in the United States, 2014-2016
Use of clinical decision support (CDS) in ambulatory clinics is increasing but remains modest. The CDS function with the greatest use is basic medication screening, which increased from 52% of clinics nationally in 2014 to 61% in 2016.
Achieving a Culture of Health: Steps for Engaging State Government
Based on findings from a 2-state exploratory study, the authors articulate research-informed action steps for promoting state government roles in the pursuit of a culture of health.
Opioid Misuse, Labor Market Outcomes, and Means-Tested Public Expenditures: A Conceptual Framework
Preventing the Next Crisis: Six Critical Questions About the Opioid Epidemic That Need Answers
Editor’s Letter: Dennis P. Scanlon, PhD
Leveraging Health Information Technology for Accountable Care: Thoughts From the Field
The authors discuss health information technology in the context of health systems, the potential harm of electronic health record vendor consolidation, and overcoming barriers in providers’ experience.
Reporting Provider Performance: What Can Be Learned From the Experience of Multi-Stakeholder Community Coalitions?
From Rhetoric to Reality: Consumer Engagement in 16 Multi-Stakeholder Alliances
The Longitudinal Impact of Aligning Forces for Quality on Measures of Population Health, Quality and Experience of Care, and Cost of Care
Evaluating a Complex, Multi-Site, Community-Based Program to Improve Healthcare Quality: The Summative Research Design for the Aligning Forces for Quality Initiative
The Aligning Forces for Quality Initiative: Background and Evolution From 2005 to 2015
Summative Evaluation Results and Lessons Learned From the Aligning Forces for Quality Program
Improving Care Delivery at the Community Level: An Examination of the AF4Q Legacy
Are Healthcare Quality "Report Cards" Reaching Consumers? Awareness in the Chronically Ill Population
Using longitudinal data, this paper examines to what extent comparative quality information in the form of healthcare "report cards" is reaching chronically ill adults.
Approaches to Improving Healthcare Delivery by Multi-stakeholder Alliances
The Aligning Forces for Quality Initiative: Background and Evolution From 2005 to 2012
Midterm Observations and Recommendations From the Evaluation of the AF4Q Initiative
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