The network, PEDSnet, combines big data from electronic health records with family engagement
A clinical research network that includes a pediatric researcher at The Children’s Hospital of Philadelphia (CHOP) has been granted $8.6 million for a 3-year period by the Patient-Centered Outcomes Research Institute.
The network, called PEDSnet, combines big data from electronic health records with family engagement—parents will be included in research design to address concerns that are important to families, especially those living with a chronically ill child.
"Families may have a different set of priorities than the researchers,” she added, “and identifying which outcomes are important to parents and children helps to shape how the research is conducted,” said Amy Kratchman, a family consultant at CHOP who is a part of the PEDSnet steering board.
Read more at newswise.
Study Links COVID-19 Pandemic to Rise in Neoadjuvant Chemotherapy for Ovarian Cancer in US
April 17th 2024There was greater use of neoadjuvant chemotherapy among US patients with ovarian cancer (OC) during the COVID-19 pandemic to reduce potential COVID-19 exposure and cancer treatment-related complications.
Read More
Age Alone Is No Barrier to Allo-HCT for AML, Data Indicate
April 17th 2024A new study is among the largest real-world analyses to date to assess trends over time and predictive factors for older patients with acute myeloid leukemia (AML) who received allogeneic hematopoietic cell transplantation (allo-HCT).
Read More
The Biden administration recently launched the Global Health Security Strategy, a new effort to combat the spread of infectious diseases; lawmakers zeroed in on the risks of massive consolidation in health care during the first congressional hearing on the Change Healthcare hack; the FDA recently announced the recall of a pair of heart devices linked to numerous deaths and injuries.
Read More