Tenacious efforts at every level, from the individual clinician to the hospital to the state to Congress, will be needed to make sure patients can access life-saving gene therapies for neuromuscular diseases.

Document with "denied" | Image Credit: © G_stockerthailand - stock.adobe.com

How Access to SMA Treatment Varies Globally and by Insurance Type

By Christina Mattina

March 18th 2025

Posters presented at the 2025 Muscular Dystrophy Association (MDA) Clinical & Scientific Conference show that therapeutic advances in treating spinal muscular atrophy (SMA) are not uniformly making it into the hands of patients who could benefit.

Health care costs - Valeri Luzina - stock.adobe.com

The Impact of Cost Sharing on High-Value Care

By Pearl Steinzor

March 14th 2025

Michael Chernew, PhD, professor of health care policy and director of the Healthcare Markets and Regulation Lab, Harvard Medical School, shares how cost-sharing policies shape access to critical health care services and influence value-based insurance design.

Stethoscope on an American flag | Image credit: MargJohnsonVA - stock.adobe.com

A Focus on MAHA, Lasting Changes to Health Care Programs for Trump’s Second Term

By Laura Joszt, MA

March 13th 2025

The second Trump administration is expected to bring changes to Medicaid, Medicare Advantage, and the health insurance exchanges, as well as highlight the Make America Healthy Again (MAHA) movement, speakers at the Value-Based Insurance Design Summit said.

Individual in flooded area | Image Credit: Rico Löb - stock.adobe.com

Flood Exposure Raises Health Care Use, Costs Among Medicare Beneficiaries

By Brooke McCormick

March 12th 2025

Flood exposure was more strongly associated with increased health care use and cost during the summer months and among Medicare beneficiaries aged 85 or older.

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