Opinion
Video
Follow-Up and Monitoring: Proactive Strategies for Long-Term Patient Engagement After Hidradenitis Suppurativa Diagnosis
Panelists discuss the critical role of effective follow-up and multidisciplinary care in managing hidradenitis suppurativa, emphasizing ongoing patient education, coordinated referrals, and personalized treatment plans to improve adherence and long-term outcomes.
Effective follow-up and ongoing monitoring are essential for managing patients with chronic conditions such as hidradenitis suppurativa (HS). Continuity of care through regular follow-up visits is one of the most valuable tools for health care providers. Early and frequent follow-up appointments, especially for patients with potential barriers such as low health literacy, help reinforce the treatment plan and ensure better adherence. Setting clear expectations from the start—that this is a chronic condition that requires ongoing management rather than a quick cure—helps patients stay engaged. Monitoring includes regular physical examinations, as many patients may have multiple affected areas beyond their initial concerns, and periodic lab tests depending on the medications prescribed.
A multidisciplinary approach is vital to address the complex and systemic nature of HS. Since patients often have comorbid conditions such as metabolic or gynecological issues, providers should use the opportunity of follow-up visits to coordinate referrals and comprehensive care. Resources like clinical guidelines and foundation-published schedules can assist providers in structuring care without having to devise everything independently. Importantly, the dermatologist often becomes a trusted health care contact for these patients, providing a chance to change their overall health trajectory by addressing multiple needs and social determinants of health.
Looking ahead, the outlook for patients with HS is increasingly hopeful due to advancements in treatment options and growing awareness. A collaborative team approach, personalized to the patient’s unique circumstances—including socioeconomic factors, comorbidities, and personal preferences—supports better outcomes. Emphasizing patient education, leveraging multidisciplinary resources, and maintaining continuous engagement can transform care experiences. As research progresses and new therapies emerge, there is optimism that the narrative around HS will continue to improve, with the ultimate goal of achieving long-term control and enhanced quality of life for patients.
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