National Hemophilia Foundation Updates Name to National Bleeding Disorders Foundation

The National Hemophilia Foundation (NHF) has changed its name to the National Bleeding Disorders Foundation (NBDF). Foundation leaders announced the change Thursday during the 2023 Bleeding Disorders Conference, held in National Harbor, Maryland.

The foundation, created 75 years ago to help people living with hemophilia, has evolved to assist those living with other inheritable blood and bleeding disorders; these include von Willebrand disease, rare factor deficiencies, and platelet disorders. The foundation supports both patients and their families through research, education, and advocacy, according to a statement released to announce the name change.

In recent years the foundation has addressed health equity issues in an effort to eliminate barriers to care for underserved populations. According to the foundation’s statement, the rebrand to include all blood disorders “aims to address concerns around diversity, inclusion, and equity to ensure every person and family facing an inheritable blood or bleeding disorder has access to the advanced care and support they need—regardless of gender, age, ethnicity, location, or socioeconomic background—so they can achieve their highest level of health.”

The National Bleeding Disorders Foundation also released a new logo to represent a wide range of inheritable blood and bleeding disorders, as well as a new tagline: Innovate | Educate | Advocate.

"Our new name is one that's inclusive, trying to represent that entire blood and bleeding disorders community based on our past. We think that this really embraces what we're going to offer into the future by bringing everybody in and offering them something. No matter what disorder you have, you will find a home in the National Bleeding Disorders Foundation," said Len Valentino, MD, who is the CEO of the foundation.

NBDF retains its mission to support its network of more than 50 chapters, which channel funds into research on inheritable blood and bleeding disorders. The foundation will find ways to use its network to help patients with bleeding and blood disorders, many of which lack a national support and advocacy network.

According to the group’s statement, “This new name aligns with that vision for the future. The foundation's national and affiliate chapters will play an important role in introducing the rebrand to the community. The strong connections they foster and support they provide at the local level will be key to NBDF's success.”

NBDF will continue to present its the new name and identity in the coming months. The group encourages patients and families to visit www.hemophilia.org, or follow these updated social media handles:

• X, formerly known as Twitter: @NBDFoundation and @NBDFespanol
• LinkedIn: @NationalBleedingDisordersFoundation
• Facebook: @NationalBleedingDisordersFoundation
• TikTok: @natlbdfoundation
• Instagram: @natlbdfoundation