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Utilizing Health Information Technology to Bridge Gaps in PNH Treatment Programming

Key opinion leaders navigate barriers to optimal care for patients receiving treatment for PNH.

Video content above is prompted by the following:

  • What challenges are health care providers commonly faced with regarding the diagnosis and management of paroxysmal nocturnal hemoglobinuria (PNH), given the rarity of the disease and the complexity of its pathophysiology?
  • How are electronic health record systems and other health information technology solutions being utilized to aid in the identification of patients with PNH, including those with inadequately controlled disease?
  • Please describe the clinical impact and progression of PNH, focusing on the symptoms patients might experience prior to diagnosis, as well as potential complications and comorbidities that may develop over time.
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