Patient-Centered Pediatric Research Receives PCORI Funding

The network, PEDSnet, combines big data from electronic health records with family engagement

A clinical research network that includes a pediatric researcher at The Children’s Hospital of Philadelphia (CHOP) has been granted $8.6 million for a 3-year period by the Patient-Centered Outcomes Research Institute.

The network, called PEDSnet, combines big data from electronic health records with family engagement—parents will be included in research design to address concerns that are important to families, especially those living with a chronically ill child.

"Families may have a different set of priorities than the researchers,” she added, “and identifying which outcomes are important to parents and children helps to shape how the research is conducted,” said Amy Kratchman, a family consultant at CHOP who is a part of the PEDSnet steering board.

Read more at newswise.