Putting Patients First: IVI Launches Patient Advisory Council

Alexandria, VA — May 6, 2020 – The Innovation and Value Initiative (IVI), a research-based non-profit improving the science and practice of value assessment, today announced the appointment of seven members to its Patient Advisory Council, and advisory body designed to ensure the patient always remains at the forefront of value assessment.

The Council, which advises the IVI Board of Directors, was envisioned as part of IVI’s patient principles when the organization was established in 2017. Chartered to ensure the organization remains patient focused and transparent, the Council will inform IVI research, strategy, methods and priorities, and support the non-profit organization’s patient engagement efforts.

“We know that the status quo — how we do value assessment today — doesn’t have the patient front and center; we don’t factor in the issues most important to real people when we assess the value of treatment,” said Jennifer Bright, Executive Director of IVI. “This is how we actively work to change that.”

The Council is comprised of high-profile leaders with deep experience in patient engagement. The seven members of the Council are:

• Alan Balch, PhD, CEO, Patient Advocate Foundation
• Donna Cryer, JD, President and CEO, Global Liver Institute
• Anna Hyde, MA, Vice President of Advocacy and Access, Arthritis Foundation
• Annie Kennedy, Chief of Policy and Advocacy, EveryLife Foundation for Rare Diseases
• Eleanor Perfetto, PhD, MS, Executive Vice President, Strategic Initiatives, National Health Council
• Jeanne Regnante, Chief Health Equity and Diversity Officer, LUNGevity
• Leslie Ritter, MA, Associate Vice President, Federal Government Relations, The National Multiple Sclerosis Society

Read the full press release here.