Desmoid Tumor Treatment: Bridging Gaps Between Community and Academic Care

EP: 1.Desmoid Tumors: Characteristics and Diagnosis Challenges

EP: 2.ICD-10 Impact: Desmoid Tumor Advances

EP: 3.Imaging and Risks in Desmoid Tumors

EP: 4.Gene Expression in Desmoid Treatment

EP: 5.Multidisciplinary Care for Desmoid Tumors

EP: 6.NCCN Guidelines and Treatment Insights for Desmoid Tumors

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EP: 7.Desmoid Tumor Treatment: Bridging Gaps Between Community and Academic Care

EP: 8.Strategic Desmoid Tumor Education and Access

EP: 9.Therapeutic Access and Emerging Treatments

EP: 10.Desmoid Tumors: Impact and Quality of Life

EP: 11.Managing Desmoid Tumor Challenges

EP: 12.Psychosocial Impact and Pain Management for Desmoid Tumors

EP: 13.Watchful Management and Patient Support for Desmoid Tumors

EP: 14.Empowering Desmoid Tumor Patients: Education and Resources

This is a video synopsis/summary of a Peer Exchange involving Ryan Haumschild, PharmD, MS, MBA; Tony Phillip, MD; Mrinal Gounder, MD; Ravin Ratan, MD, MEd; and Derek Van Amerongen, MD, MS.

Haumschild explores the variations in treating desmoid tumors between academic and community-based institutions. Phillip highlights the crucial differences, particularly in access to clinical trials, with larger centers having more options. Shared clinical decision-making emerges as a key aspect, involving educating patients on treatment choices and understanding the nuances of desmoid tumors’ benign yet symptomatic nature. Gounder emphasizes the need for patient education, challenging the perception of benign tumors and the importance of shared decision-making.

The discussion extends to the role of tailored treatment plans based on patient priorities and the flexibility in choosing therapies for desmoid tumors. Ratan underscores the satisfaction derived from aligning treatment plans with patients’ daily lives, acknowledging the flexibility inherent in managing this specific disease. Van Amerongen emphasizes the importance of managing patient expectations and creating realistic outcomes through effective shared decision-making. The conversation underscores the significance of collaboration between stakeholders, fostering partnerships for improved patient outcomes in desmoid tumor treatment.

Video synopsis is AI generated and reviewed by AJMC^® editorial staff.