Watchful Management and Patient Support for Desmoid Tumors

EP: 1.Desmoid Tumors: Characteristics and Diagnosis Challenges

EP: 2.ICD-10 Impact: Desmoid Tumor Advances

EP: 3.Imaging and Risks in Desmoid Tumors

EP: 4.Gene Expression in Desmoid Treatment

EP: 5.Multidisciplinary Care for Desmoid Tumors

EP: 6.NCCN Guidelines and Treatment Insights for Desmoid Tumors

EP: 7.Desmoid Tumor Treatment: Bridging Gaps Between Community and Academic Care

EP: 8.Strategic Desmoid Tumor Education and Access

EP: 9.Therapeutic Access and Emerging Treatments

EP: 10.Desmoid Tumors: Impact and Quality of Life

EP: 11.Managing Desmoid Tumor Challenges

EP: 12.Psychosocial Impact and Pain Management for Desmoid Tumors

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EP: 13.Watchful Management and Patient Support for Desmoid Tumors

EP: 14.Empowering Desmoid Tumor Patients: Education and Resources

This is a video synopsis/summary of a Peer Exchange involving Ryan Haumschild, PharmD, MS, MBA; Tony Phillip, MD; Mrinal Gounder, MD; Ravin Ratan, MD, MEd; and Derek Van Amerongen, MD, MS.

Haumschild leads a discussion with Gounder, Phillip, Ratan, and Van Amerongen on the management and treatment approaches for patients with desmoid tumors. Gounder emphasizes the importance of education and patient selection in the watch-and-wait approach, acknowledging the inherent anxiety in patients and the need for ongoing reassurance. Phillip supports the notion of delayed action, clarifying the distinction between desmoid tumors and other cancers that demand immediate treatment. Ratan employs a goal-setting approach, aiming for patients to live as normally as possible and considering treatment only when tumors interfere significantly. Van Amerongen stresses the importance of balancing conservative and aggressive treatments based on patient priorities, engaging in shared decision-making, and providing transparent information.

The discussion shifts to Van Amerongen, who addresses health care providers’ role in supporting patients during treatment, advocating for a personalized, customizable approach. He highlights the significance of understanding patient priorities, engaging in informed consent, and fostering transparency in outcomes. Additionally, seeking second opinions is encouraged to build confidence in the chosen treatment plan. The conversation underscores the evolving expertise in desmoid tumor management and the value of collaboration in optimizing long-term outcomes.

Video synopsis is AI generated and reviewed by AJMC^® editorial staff.