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Video

Strategic Desmoid Tumor Education and Access

Discover how medical institutions provide education on desmoid tumors, ensuring patient referrals and expanding access to innovative therapies.

This is a video synopsis/summary of a Peer Exchange involving Ryan Haumschild, PharmD, MS, MBA; Tony Phillip, MD; Mrinal Gounder, MD; Ravin Ratan, MD, MEd; and Derek Van Amerongen, MD, MS.

Haumschild discusses strategies for educating providers and patients about desmoid tumors with Phillip. Phillip emphasizes the importance of pathologists directing desmoid cases to medical oncologists, reducing unnecessary surgeries. The collaboration with patient advocacy groups and pharmaceutical companies enhances patient education by using social media platforms and webinars.

Ratan explores challenges and strategies for enhancing access to novel desmoid tumor therapies. The awareness challenge is addressed by collaborating with community physicians, educating them about the disease and leveraging high-quality data to showcase treatment advances. At institutions such as The University of Texas MD Anderson Cancer Center in Houston, a multidisciplinary approach ensures alignment among physicians, surgeons, radiation oncologists, and pathologists. Regular meetings facilitate awareness of ongoing studies and treatment options, enabling efficient patient care. The success lies in continuous alignment, flexibility, and adapting to evolving treatment options for desmoid tumors. The emphasis on awareness, education, and collaboration signifies a comprehensive approach to improving patient access to novel desmoid tumor treatments.

Video synopsis is AI generated and reviewed by AJMC® editorial staff.

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