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Desmoid Tumors: Impact and Quality of Life


Explore the multifaceted impact of desmoid tumors on patients’ physical, functional, and psychosocial well-being as experts emphasize effective symptom management and quality-of-life enhancements.

This is a video synopsis/summary of a Peer Exchange involving Ryan Haumschild, PharmD, MS, MBA; Tony Phillip, MD; Mrinal Gounder, MD; Ravin Ratan, MD, MEd; and Derek Van Amerongen, MD, MS.

Haumschild, along with Gounder and Phillip, discusses the crucial topic of the impact of desmoid tumors on patients’ quality of life. Gounder emphasizes the recent recognition of psychosocial and unique challenges faced by patients, especially younger patients. The conversation underscores the importance of recurrent discussions about quality of life, considering pain, discomfort, and psychosocial aspects. Phillip notes that improvements in quality of life serve as a vital indicator of treatment success, even if the tumor mass does not significantly shrink. The discussion highlights the need for a holistic approach to patient care, managing expectations, and celebrating enhanced quality of life as a positive outcome. Overall, the segment emphasizes the multifaceted nature of desmoid tumor impact, urging ongoing conversations about various aspects of patients’ well-being.

Video synopsis is AI generated and reviewed by AJMC® editorial staff.

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