Multidisciplinary Care for Desmoid Tumors

EP: 1.Desmoid Tumors: Characteristics and Diagnosis Challenges

EP: 2.ICD-10 Impact: Desmoid Tumor Advances

EP: 3.Imaging and Risks in Desmoid Tumors

EP: 4.Gene Expression in Desmoid Treatment

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EP: 5.Multidisciplinary Care for Desmoid Tumors

EP: 6.NCCN Guidelines and Treatment Insights for Desmoid Tumors

EP: 7.Desmoid Tumor Treatment: Bridging Gaps Between Community and Academic Care

EP: 8.Strategic Desmoid Tumor Education and Access

EP: 9.Therapeutic Access and Emerging Treatments

EP: 10.Desmoid Tumors: Impact and Quality of Life

EP: 11.Managing Desmoid Tumor Challenges

EP: 12.Psychosocial Impact and Pain Management for Desmoid Tumors

EP: 13.Watchful Management and Patient Support for Desmoid Tumors

EP: 14.Empowering Desmoid Tumor Patients: Education and Resources

This is a video synopsis/summary of a Peer Exchange involving Ryan Haumschild, PharmD, MS, MBA; Tony Phillip, MD; Mrinal Gounder, MD; Ravin Ratan, MD, MEd; and Derek Van Amerongen, MD, MS.

Haumschild discusses the challenge of diagnosing abdominal wall desmoid tumors associated with pregnancy, trauma, or hormonal changes. Gounder and Phillip share perspectives on obstetrician-gynecologist and general surgeon awareness, emphasizing the need for education. Van Amerongen underscores the significance of a multidisciplinary team in evaluating and treating desmoid tumors, highlighting the evolving treatment options and the importance of case sharing. Ratan emphasizes the expanding menu of treatment options, citing advancements that make previously ineligible tumors candidates for certain therapies. The discussion converges on the pivotal role of multidisciplinary care in optimizing patient outcomes.

Shifting focus, Van Amerongen clarifies that the Orphan Drug Act doesn’t affect coverage decisions for rare diseases. He emphasizes that health plans scrutinize all drug therapies uniformly, assessing clinical efficacy, safety, tolerability, and cost. The rarity of a condition doesn’t influence the level of scrutiny or approval, aligning with the goal of supporting the standard of care. The segment emphasizes the importance of comprehensive, patient-centric approaches in the management of desmoid tumors.

Video synopsis is AI generated and reviewed by AJMC^® editorial staff.