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Managing Desmoid Tumor Challenges

Opinion
Video

Explore effective approaches in handling fatigue, insomnia, and financial difficulties of patients with desmoid tumors as experts highlight psychosocial support and treatment considerations for quality care.

This is a video synopsis/summary of a Peer Exchange involving Ryan Haumschild, PharmD, MS, MBA; Tony Phillip, MD; Mrinal Gounder, MD; Ravin Ratan, MD, MEd; and Derek Van Amerongen, MD, MS.

Haumschild delves into the management of fatigue, insomnia, and financial difficulties in patients with desmoid tumors with Ratan. Ratan emphasizes the psychosocial toll on patients, acknowledging the distress associated with the diagnosis, independent of physical symptoms. He highlights the importance of recognizing the significance of the tumor to the patient and approaching discussions with sensitivity. The conversation extends to financial challenges, considering the impact on patients’ ability to work. Ratan stresses the need for open communication about out-of-pocket costs, recognizing the potential burden and offering alternative solutions. The segment underscores the multifaceted nature of desmoid tumor care, intertwining medical and psychosocial considerations while advocating for transparent discussions to address patients’ holistic needs effectively.

Video synopsis is AI generated and reviewed by AJMC® editorial staff.

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