Opinion|Videos|December 16, 2025

Insurance Coverage and Patient Education

Experts discuss dose reduction strategies and emerging therapies for desmoid tumors, emphasizing patient monitoring and quality of life improvements.

Panelists discuss the questions below in this video.

  • From your experience, what has insurance coverage been like for the pharmacotherapies used to treat desmoid tumors? Why might a step through with tyrosine kinase inhibitors before nirogacestat not be beneficial for patients? How do you educate patients about desmoid tumors and are there any resources that you find useful?

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