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Opinion|Videos|November 25, 2025

The Burden and Unmet Needs Associated with Desmoid Tumors

Author(s)Scott Soefje, PharmD, MBA, BCOP, FCCP, FHOPA , Mrinal Gounder, MD, Gina D'Amato, MD

Patients with desmoid tumors face significant clinical and economic burdens, impacting their quality of life and leading to ongoing treatment challenges.

Episodes in this series

EP. 1 Key Background Information on Desmoid Tumors

EP. 1 Key Background Information on Desmoid Tumors

EP. 2 Exploring the Heterogeneous Nature of Desmoid Tumors

EP. 2 Exploring the Heterogeneous Nature of Desmoid Tumors

EP. 3 The Role of Molecular Biomarkers in Diagnosing Desmoid Tumors

EP. 3 The Role of Molecular Biomarkers in Diagnosing Desmoid Tumors

EP. 4 The Burden and Unmet Needs Associated with Desmoid Tumors

EP. 4 The Burden and Unmet Needs Associated with Desmoid Tumors

EP. 5 When to Observe Desmoid Tumors

EP. 5 When to Observe Desmoid Tumors

EP. 6 Surgery, Cryotherapy, and Radiotherapy for Desmoid Tumors

EP. 6 Surgery, Cryotherapy, and Radiotherapy for Desmoid Tumors

EP. 7 Novel Pharmacotherapies and NCCN Guideline Recommendations

EP. 7 Novel Pharmacotherapies and NCCN Guideline Recommendations

EP. 8 Examining a Novel FDA-approved Therapy in Desmoid Tumors

EP. 8 Examining a Novel FDA-approved Therapy in Desmoid Tumors

EP. 9 Dose Reducing and Sequencing Therapies in Desmoid Tumors

EP. 9 Dose Reducing and Sequencing Therapies in Desmoid Tumors

EP. 10 Insurance Coverage and Patient Education

EP. 10 Insurance Coverage and Patient Education

EP. 11 Additional Clinical Considerations for Desmoid Tumors

EP. 11 Additional Clinical Considerations for Desmoid Tumors

EP. 12 Optimizing Patient Care and the Potential of Artificial Intelligence

EP. 12 Optimizing Patient Care and the Potential of Artificial Intelligence

EP. 13 Unmet Needs and the Future of Desmoid Tumor Management

EP. 13 Unmet Needs and the Future of Desmoid Tumor Management

Panelists discuss the questions below in this video.

There any molecular biomarkers that are commonly associated with desmoid tumor?
What is the role of biomarker testing in patients with suspected diagnosis? What makes the definitive diagnosis?

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